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Brains, change and big long names

Brains, change and big, long names

The hardback version of this book, My book about brains, change and dementia, is available to purchase from Booktopia.

You can also find other books and resources in our information library for preschool age children.

Parent guide


It’s great that you have chosen to read about dementia with your child. This e-book was designed to be a way of starting up conversations between you. Be ready for your child to ask questions that might surprise you! We hope this book helps you feel more confident to answer them.

The words and subject matter have been carefully chosen by Alzheimer’s Australia Vic Family Counsellors. They offer one way of explaining complex concepts such as brain function, dementia progression and death, as well as exploring children’s feelings about these things. In this way, this book caters for children who have a loved one at any stage of the disease process.

Although difficult, many parents find it helpful to have honest conversation with children of all ages about the progression of dementia and death because:

  • The reality can be less frightening for a child than the unknown
  • It opens the door for them to share their fears, worries and questions with you
  • It allows them to adjust to and prepare for what is to come
  • It gives permission for them to discuss difficult subjects with you
  • This is not a typical story book; the ending is a question for you and your child to ponder together.

For more information about supporting children when someone in the family has dementia, see our Dementia and family relationships page.

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Last updated
24 September 2024