Transcript
[BEGINNING OF RECORDED MATERIAL]
[TITLE CARD: HOLD THE MOMENT]
[TITLE CARD: DEMENTIA AUSTRALIA]
Jim: People pointed out that I'd had conversations with people, or met people in my work. And I couldn't recollect the meeting when they could. I'm very organised as a person. And I was starting to realise that I wasn't able to file things where I could find them. So, it was frustrating. And a lot of the decisions I was making were pretty big decisions, so you get them wrong and it makes life difficult. And it wasn't till much later, at some point, went for a cardiologist appointment.
Receptionist: "Mr. Rogers, the doctor will see you now."
Jim: And the cardiologist sat me down in the room. And my phone was ringing.
[Sound of phone ringing.]
And it was annoying, because it was ringing, I couldn't work out how to put it on silent, or turn it off. So anyway, the call stopped and I sort of left it and then it rang again. And she said, "you know, could you just turn your phone off?" And I just couldn't work out what I needed to do to stop this phone from making noise.
Jim: And she said: "You know, are you experiencing this sort of thing now and again, or have you...?" And I was saying: "Yes, like these are the weird things that are happening." And from that point, she then referred me to a memory clinic. And when they said: "Unfortunately, we can see that you have younger onset Alzheimer's", you literally could have knocked me off my chair. It was almost an out-of-body experience. I just... it's as though time stood still.
[Sound effect representing a shift in time.]
Jim: I'm Jim Rogers. I'm 57 years old and I'm living with younger onset Alzheimer's. This is Hold the Moment, a podcast from Dementia Australia, full of real stories about life after diagnosis. But I'm not alone. I'm joined by my co-host and friend, Hamish Macdonald.
Hamish: G'day Jim. I've met heaps of people living with dementia through my work as a journalist. But all of this hit much closer to home when my dad was diagnosed a few years ago with Lewy body dementia. He'd been diagnosed previously with Parkinson's disease. And I guess it was a bit of an evolution from there. Getting news like that Jim - well, it's pretty big.
Jim: It is. It's huge. To be honest, Hamish, it's shocking. Since getting that diagnosis all I wanted to do was find out information and connect with other people: people who are experiencing what I am, because it's very isolating. And I knew nothing about dementia. So I needed to find out as much as I could.
Hamish: In many ways that's exactly why we're doing this podcast together, for Dementia Australia.
Jim: And you'll meet lots of people who are living with dementia. And we're going to explore some of the common issues that all of us are facing.
Hamish: So dad's living in residential aged care now, close to my siblings and I. We are all in Sydney. I go to see him probably at least once a week. And when he's up for it, we go swimming in the Bronte ocean pool. It's something he loves, and I enjoy too. He's also an outdoors man. We grew up in the Snowy Mountains. Dad was always out rowing, cross-country skiing, hiking in the mountains, but also running his pharmacies. It was really difficult for him to move away from 'the Snowies'. I know he misses it enormously. But he also misses his independence.
Jim: This is something that so many people I talked to feel. We're not going to sugarcoat how difficult things can get. We're also going to show the many ways you can live a full and rich life, with dementia.
Hamish: So, in this series, we're going to meet Heather who's staying active and learning new skills along the way.
Heather: Oooh certainly. I have line dancing. My teacher, only the other day, she said: "You're all facing the wrong way." And they said: "Oh and Heather is too." And she said to them: "And Heather's got an excuse!" [Laughter.]
Jim: And Anthony, who isn't shying away from dating with dementia.
Hamish: Ooh la la.
Anthony: I clicked straight away. And then we started texting, and then talking on the phone. And then I told her my diagnosis.
Hamish: And then there's Pat, facing the scariest part of it all with a smile.
Pam: I'm very lucky because I was diagnosed early, because that allowed me to do what I did to get my - I call my 'active dying plan' - out of the way. And now I'm on my 'active living plan' and my adventure with dementia.
[Music plays.]
Jim: Hold the Moment is full of helpful tips
Hamish: and stories that we hope you might take some comfort from. Alright, Jim, you ready to do this?
Jim: Let's do it. Let's find out how to live your best life with dementia.
Hamish: Search 'Hold the Moment' wherever you listen to podcasts.
[END OF RECORDED MATERIAL]